Getting the Most from Treatment
Doctors are here to help. They know that each person with hemophilia and inhibitors is a unique person who needs special care and a treatment plan that fits their needs.
To get the most out of your treatment, try to establish a relationship with your doctor and hemophilia treatment center. That way, they can get to know your unique considerations and concerns — and can build a treatment and communication plan that suits you.
There are several ways to go about building a relationship with your doctor and hemophilia treatment center.
Here are three things you can do to start.
1. Ask Questions
Don't be afraid to ask questions. When it comes to hemophilia with inhibitors, there are no dumb questions. It is important that you understand everything about your condition and what it means to your day-to-day life.
Questions for your physician and hemophilia care team will probably vary based on the type of appointment.
Since people tend to forget their questions once they are in a busy doctor's office, write your questions down and bring them with you. Having your questions ready ahead of time is one of the best ways to get the most out of your visits — and treatment.
2. List Your Concerns
Create a list of your concerns or things you have noticed that you want to ask questions about. That way, you can remember everything you want to discuss. If you're not sure where to start, check out the Talking with Your Doctor section and see if that helps.
Remember, KnowInhibitors is a resource designed to help people with hemophilia and inhibitors, but it cannot replace the guidance you can get from your doctor and hemophilia care team.
While using this site, jot down any questions that might come up. Bring them with you to your next appointment — it can help you make the most of your next check-up!
3. Start a Journal
You might also think about starting a journal about your bleeding episodes. This could also include any information you think might be helpful later — like, how often the bleeding episodes are occurring and whether they happen following certain activities.
Creating a history like this can help you and your doctor spot trends that may be useful.
Remember, a little bit of knowledge can go a long way towards making you feel more in control. So, the more you learn, the more you'll feel like you're ready.