Don't wait until an emergency happens to formulate your emergency care plan. It's important for people with hemophilia and inhibitors to seek treatment quickly, since bleeds can be harder to stop.3,12
- Work with your doctor and hemophilia care team to develop an emergency plan in advance, and share it with babysitters, teachers, etc.
- Map out the best route to your nearest emergency department, and know and keep with you the best way to notify your treatment center of an emergency situation.
- Post all important phone numbers in an easy-to-find location, for example, maybe next to the telephone and in your emergency bag.
Pack an emergency department bag. Fill it with clothes and any other items you would want while at the hospital.12
Also include a few items that should be regularly updated. These are4,12:
- Your specific diagnosis and treatment plan
- Results of the last inhibitor titer or any other pertinent medical records
- List of any current medications and supplements
Also, be prepared to answer detailed questions about the bleeding episode — How did it start? What treatment have you tried already? Etc.
Be Prepared, So You Don't Have to Panic
By creating a plan ahead of time, you're doing the best thing you can to be prepared for an emergency.
If an emergency does happen, you won't have to think. Just follow the plan.
Even in an emergency, it's important not to panic — remember, preparation leads to better chances of success.
If you are having an actual emergency, call your doctor or hemophilia care team immediately.