Hemophilia should not have a serious impact on your child's education. Many parents worry about how hemophilia with inhibitors will affect schooling. Your child should be able to enjoy a normal school experience.
Even so, it is important that the school have a good understanding of possible problems.
Build a relationship of mutual trust between teachers and your child. Children with hemophilia are no different from others — they might look for any excuse to get out of lessons and activities they don't like — and if they think they can get away with pretending to have a bleed, they may try it.
That said, it is important for children with hemophilia and inhibitors to attend school as much and as regularly as possible, just like other children. But, there might be times when your child misses school while recovering from a bleed.
In very rare cases, they may need a wheelchair or crutches to help them get around school. The school should be aware of this so they can prepare.
Keep Your Child Involved
Always keep a child with hemophilia and inhibitors involved in normal activities. Focus on all the things your child can do, rather than the odd few that he cannot. These will vary based on your child's severity, age, goals, and talents.
In general, your child can enjoy most school-based activities. But, it is worth talking to teachers about your child's participation in sports.
Playgroup, Nursery, Infants, and Elementary School
It is important for your child to join in play and exercise with their classmates, especially at a young age. The regular play activities of young children usually present little problem beyond the occasional ugly bruise.
Children with hemophilia and inhibitors can use scissors and other sharp instruments as long as they know how to use them safely.
Elementary school sports are not as competitive or rough as they are later at higher-grade levels. So, unless your child has a specific problem, like a target joint (a joint particularly prone to bleeds), they should join in activities.
As your child gets older, they get more competitive. The sports they enjoy might get rougher and the activities they want to join in might get wilder.3,25
As a rule of thumb, it is better for your child to avoid more violent contact sports, such as football, boxing, wrestling, contact martial arts, and so on.3,25
Sport and exercise are good. They strengthen the joints and build up the muscles protecting them — making bleeds less likely.3,25
Still, your child and his school need to be sensible. Use protective clothing and gear, as appropriate. Many sports are fine for children with hemophilia with inhibitors. When a sport does cause a problem, it is usually easy to find a safer option that's just as enjoyable.3,25
Not all activities are appropriate for all people. Be sure to consult your child's physician or treatment center before beginning any exercise program or participating in sporting activities. If an injury occurs, contact the physician or treatment center immediately for the appropriate treatment.