Fine Tuning Your Experience

Well, by this point in life you've learned a lot, haven't you? You might feel like you have your hemophilia sort of mastered. Or, you might be distracted with making big decisions about school or work. That's very understandable.

But, there's always more to learn. So, don't lose sight of the fact that you have a few new considerations to keep in mind.

A Different Hemophilia Center?

Depending on how often you have appointments and how far you travel for work or for your studies, you might find that you need to register with a new hemophilia center. That way, you'll have access to one that's close at hand, if you need it.

This shouldn't determine where you work or go to school. But, if you've relocated to a bigger city, you might find you now have even better resources than you did.

Of course, if you're really happy with your hemophilia care team and have a great relationship with them, you might be able to fit your appointments in during holidays or trips home.

But, wherever you go and wherever you are, make sure you know the contact details of your nearest hemophilia center.

Your current doctor or hemophilia care team are the best source of advice on this.

Taking It Easy

For some strange reason, most young adults focus more on the social side of life, perhaps more than on the work or educational side.

Once you go away to college or move into your own place, there won't be any parents to nag you, or tell you to be careful, or remind you to look after yourself.

Now, that probably sounds like absolute bliss. But, in order to get the most out of life, it's best to rein yourself in slightly.

Obviously, the main reason is to avoid bleeds. If you can avoid getting them in the first place, then you can keep going to class, keep working, keep making money, keep seeing your friends — and keep having good times. Just like you should be doing.

The last thing you want is to have to interrupt everything, have to stay home with a painful bleed, or worse still, do a stint in the hospital. Because then, you'll have to catch up on work or school later (although, of course, your study center or employer will know of your medical condition and make allowances when necessary).

Losing Your Inhibitions Isn't Always Good with Inhibitors

In short, avoid putting yourself in situations where you could get a bleed. It's not worth it.

Alcohol and other substances might seem like a great idea at the time, but when we lose our inhibitions, we can also end up with random injuries or worse.

Some people can wake up the next day and laugh at mystery bruises. You probably know from bitter experience that it might not be quite so funny for you.

Fret Not, Dear Mother

You may find going away to college is an absolute breeze. But, don't forget those you leave behind. This is a time, especially for moms, when they're almost grieving for the child that's now gone.

Of course, they don't really lose you. You'll just be gone away for a couple of weeks before coming back with a massive bag of laundry. But, to them, their house suddenly seems very empty once you're gone.

Yes, they want you to call them at least once a week. And yes, they want you to reassure them that you're looking after yourself and taking your treatment. So, try a little tenderness, if you can. Humor them by sticking to your prescribed treatment plan — you'll be glad you did.